About Me

Hi and welcome! I'm Angelica Nelson.  Just before Christmas, 2017, I found out I probably have Celiac disease or Non Celiac Gluten Sensitivity, NCGS. The diagnosis was difficult and not traditional, mostly based on my genetics and my symptoms.  The Gastroenterologist MD I saw didn't think it was advisable to do an endoscopy for several reasons, but he advised me to not split hairs because it's risky, and to say only that I have Celiac disease. Up until then I had been saying "NCGS."

As I studied the illness more and more, I became convinced that I had it long before it was diagnosed.  A few moments in my history stood out as times when I should've been screened earlier.  First, when I was 3 and was ill, a screening should've alerted my parents that I might have Celiac someday.  Then, at about 9 years old I had a long period of terrible gut illness.  Then at 16 when PCOS became active. Next at about 22 when migraines became active (that took 10 more years to diagnose too).  Finally, after I had blood clots for no apparent reason in 2006.  The clots were small and ended up in my lungs. 

The wheels of medicine turn so slowly that by the time I was diagnosed, I had several "extraintestinal manifestations" of Celiac disease.  That means the immune system attacks the body, beyond just the gut, in Celiac disease.  I have many genes that are being investigated for involvement in Celiac disease, some are "virulence" genes, others are being considered for inclusion in the genetic test for potential Celiac disease. 

If I have one message, it's, hurry up, employ the researchers and pave the way for their research to become clinical practice. We can't wait 30 years for one advance. That's almost half of somebody's life. Get a move on.  

So I have struggled with chronic pain that limits my mobility and have several 'diagnoses of exclusion' that grate on my nerves because it means medicine isn't prepared to deal with my health properly. Being gluten free has been a huge benefit, especially since I'm no longer suffering as much from chronic pain & that's so freeing!

I am owned by a couple of kitties, and have a wonderful husband, Doug.
In addition to Celiac, I have been diagnosed with ME/CFS and have had some success with the Pridgen Protocol.  ME/CFS has no official diagnosis or treatment, despite being very common and extremely damaging, so please support advocacy efforts.  NOTE:  Jen Brea's story has a happy ending, giving everyone hope.

In the early 2000s, I  had an IT career, but the stress of the long hours triggered my pre-existing migraines.  They were finally controlled and I was able to return to work.  But then, I had blood clots for no apparent reason.  Still I soldiered on.  I thought maybe the cold weather in Vermont was a problem.  It did make me uncomfortable. So I moved to North Carolina in 2009.

Instead of helping it seemed to make me worse.  I knew the changes in barometric pressure could cause more migraines, but it seems to me now, that it's the toxic mold that's the problem (you know, that charcoal gray stuff that grows in wet weather?).  I love my old house, but it needs upkeep of a kind I may not be able to afford. It would've been better for my health to choose a new built home, but I wouldn't have had the lovely wooded backyard then. I'm a nature lover.

Going back even farther, I grew up in New Jersey in a lovely suburb that provided me with a safe and happy childhood.  Even before that, I had been an asylum seeker, then a refugee, and now a citizen of the USA.  I came from Romania with my mother in the late 1970s.  I'm taking the current political situation (under Donald Trump) very badly.  It honestly is a stress I can't bear. All I want to say about that is, the forces of discrimination are always looking for the next target.  That's the real problem. Free your mind (music video) I try to live that every day, because that's how we get out of this.

One of the best ways to get to know someone is by their taste in music. My favorites include Wham!, Led Zeppelin, Melle Mel, John Mellencamp, The HU, and Kenny Rogers. Yeah so, no categories for me. One of the unusual things about me is that I grew up in a white neighborhood with a shuffling / rollerskating rink in the 1980s, near NYC. Sometimes I feel like I still relate to the world filtered through the microcosm of shuffle skating.  So in the 1980s, I'm listening to Power 99 (one of the earliest rap stations), and the classic rock station in Philadelphia WMMR 93.3 both, plus at the time 97.5 was a pop station. It was a good time to be listening to music. Howard Stern wasn't on Sirius yet, I heard him every morning and I'm not a bit surprised that he turned out to be "liberal". I'm honored to have had the music influences I had. It was a unique time that will never happen again. Everyone's life is like that, wherever you are.

On this blog, I try to keep to nutrition issues though.

On a nutritional level, I believe that organic food gives you more vitamins and antioxidants.  I believe that biodynamic would be an awesome farming method to adopt from Europe, and I believe that the current use of Genetically Modified Organisms (GMOs) is not beneficial to health or farmers. I would love to become healthy enough to have a little garden of my own and tend it, and I dream about joining the many local organic farmers that already exist.

My college education included lots of Biology and Chemistry so I sometimes highlight new research articles, and discuss them in a very technical way.  In order to save my body from total breakdown, I had to continue and even improve my skills at reading scientific articles directly from journals.  I think if I didn't have that skill, I might be even worse off now.  Instead, my health indicators are all improving according to my doctor and he's very happy with my progress.

With my blog I hope to keep things updated and helpful.  Please contact me if you'd like to see a resource I haven't listed yet.  I believe in a very strict gluten free diet, that eliminates cross contamination completely, and eliminates products that claim gluten free but actually include shady ingredients like wheat starch and 'natural flavor' among others.

I also love ethnic food and have been exploring Indian foods recently.  I hope to explore some other ethnic foods made at home, but I've only just started this blog.  I also have limited mobility so I stick to simple, easy to make recipes.

I do not have or want affiliates, my opinions are totally my own.  I'm happy to review something if asked, but it will be an free and honest opinion. Therefore, my blog is not monetized and will not be.  If, hopefully soon, I find work again, that will be my income.  I also don't do any social media anymore. (Wondering why?)  I do advertise the blog, but mostly it's word of mouth.

Thanks for visiting, please make suggestions, and please tell someone local!


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