Chit Chat: Local Millefiori Bakery, Thyroid, Fatigue and Positivity



Here's an update on my health, it might be part of a series.  Just a collection of things I've been thinking and doing lately.

Millefiori Bakery in Durham, NC


I changed my diet to be more ketogenic recently. The last time I did that, I wasn't aware of Celiac Disease and every "cheat day" involved gluten.  I felt much better on keto, but something was still "wrong" and now I know it was gluten.  This time around, I'm planning for my future high carb days.  I went to Millefiori Bakery and bough three loaves of delicious sourdough gluten free bread made of sorghum and organic white yams primarily.  It's absolutely essential for me, on a keto diet to have excellent carbs that are satisfying and nutritious whether I am using a small slice of bread per day, or having a high-carb day.  Having a "cheat day" that includes harmful foods isn't a good idea for me.

Here's a picture of the incredibly delicious bread I bought today.  I can't possibly overstate how tasty it is. I went to her location to pick up the bread and the cost for three loaves was $22.50.  She said it freezes well.   I came home and tasted heaven!  This is honestly the best tasting bread I've had that's gluten free. And my previous favorite on taste, was Canyon Heritage Classic White. This blows that out of the water, possibly because when I arrived the loaves were still cooling and I had to wait an hour for them to be cool enough to slice.  Can't beat the freshness!

Crust: Chewy and crisp, somehow both at once, just like gluten bread.  Inside:  Moist and bready with a wonderful texture.  Flavor:  Out of this world sourdough flavor!

I know I sound like a commercial. But this bread is worth it.  Meg is an amazing baker and I wish her a lot of success. This is a fully non-commercial blog, in case anyone's wondering. If I feature someone's business it's because I adore that business, no other reason.

Edit:  The next day, I had refrigerated the bread and it behaved like all homemade bread and became more dense.  Then I toasted it, and it toasts right back to right out of the oven goodness.  It even recovers the crisp crust after toasting. Well done!

Look for Millefiori Bakery at the Durham Farmer's Market on Wednesdays starting April 17th 2019.

The 'Gray Zone' of Medicine

Not sure how interesting this post will be for general use, but I think it's important to share our experiences when health is in the gray zone of diagnosis of exclusion.  I tend to think of that as a growing list of "conditions" that are poorly defined in medicine and apply to me.  Every one of the ones I discuss on the blog are ones a doctor attached to me, usually without doing any specific testing, just general testing like one would have in an annual physical.

My Fibro diagnosis is very vague, so let's use it as an example.  A Pain Center doctor  (but not a Rheumatologist) said I had it after looking for the pain points.  But my whole body hurt at the time, because of Celiac.  So do I dismiss that diagnosis? I don't know.  It's part of the gray zone of medicine. My experience with ME/CFS has taught me that it can take decades to get even a basic diagnostic test for an illness, much less a valid treatment. And meanwhile people suffer to an extent that many professionals don't want to acknowledge.  If that's not failure to diagnose/treat, then what is it?


ME/CFS or "Fatigue Syndrome"

Doctors should be up in arms about not having any tools to help with ME/CFS patients.  They should be beating down the doors of the FDA until a test and a treatment is found.   The latest development in medicine is the Functional Medicine doctor who doesn't take insurance because they want to be free to help patients, partly by being free of the requirements of seeing so many patients, that they have no time to think.  I consider this to be a positive sign that doctors are fighting back against the dumbing down of medicine, and the disempowering of doctors to help patients.  However, it's very expensive.

If you have the time and energy, raise your voice to demand that diagnosis of exclusion types of health issues should be prioritized immediately and given helpful tools, and why not start with ME/CFS?  I would be grateful, and so would the silent millions who can no longer speak for themselves.  If you have the energy, take part in a Millions Missing event and speak to your legislators about funding research for this disease and others which are "diagnosis of exclusion."  It's time for our medical institutions to start helping and stop debating. 

My Celiac Status

 Last year I found out I was almost certainly Celiac and my gastroenterologist suggested I just call it that to avoid possible harm from people assuming I can have "a little" gluten, such as cross-contaminated food in restaurants.  My gut condition is precarious and doing gluten challenge would probably not be something I can survive without several Emergency Room visits probably for bowel obstruction.  Nobody needs that kind of risk.

If you look on the left side of my blog, or if you click the three lines for the menu, you will see my sidebar, which contains, among other things, a link to the Celiac test that doesn't require gluten challenge.  I'm eagerly awaiting the FDA's green light on that test.  I think many people are.  If you have time, please write to the FDA requesting they fast track that test and contact your insurance company to ensure that they understand it might help with the costs of diagnosing Celiac.  Progress in medicine is a financial matter as well as a health matter. 


Thyroid and T3


And now for some good news! The Celiac, or possibly the ME/CFS affected my liver and my thyroid to a point where it took a visit to a local functional medicine doctor to figure out how to treat my thyroid.  Dr. Dalton-Bethea is an incredibly talented doctor.  Give her a try if you can, financially.  She made my tests and treatment affordable, which is important, because she doesn't accept insurance.  As it turns out, a person can have too much Reverse T3 and in my situation the fix is to take active T3, called liothyronine.  This is an ordinary drug, but for some reason most doctors never get far enough into why people have thyroid problems to actually prescribe it.  Gut, thyroid and Celiac issues are interrelated and it would be good to treat them that way.

After a period of time, I started also taking some additional iodine.  Iodine has become a big focus of my diet in the past year. I read both sides of the debate of whether or not 1.5mg of iodine is too much.  I decided that, since I have many Neanderthal genes, and since Japanese people (who have the most Denisovan genetics on earth) do well with high levels of iodine, I am placing my bet that the Japanese way is right for me.  So I focus on getting a lot of iodine.  It seems to help a lot.  I really notice if I forget to take it, or if I forget to add my seaweed to foods regularly.



Staying Positive


I love motivational videos and have been watching this channel:  https://www.youtube.com/channel/UCnYMOamNKLGVlJgRUbamveA/featured    I also regularly seek out academic commencement speeches (speakers speaking at school graduations) because they're so positive.  So if I have a secret for why I'm not very depressed, despite being ill, it's because I seek out positive people in hopeful situations and listen to what they're saying.  Whatever works for you, to keep you on track, you should do that too. Either try my method, or use the one that works for you. Don't let illness or struggles get you down.  Life's too short to live with worry.

Keeping positive amid the smorgasbord of life is the way to solutions and celebrations.


Comments

  1. I learned so much from this post. I didn't know about Milliefiori Bakery and their sourdough bread. I'm looking forward to trying it. In the meantime, your philosophy of seeking the positive is wonderful. We are so careful about what we put in our bodies; we should care as much about what we feed our souls. Love it. Keep up the good work!

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