Officially not allergic to the Big 8

By -
The big 8 allergens are: wheat, soy, peanuts, tree nuts, eggs, milk, fish, shellfish.
It doesn't mean I have no reaction to gluten, it just isn't IgE related (IgE mediated allergy is what causes anaphylactic shock). This is a huge load off my mind.  Big thank you to RequestATest for making this easy to do.  On the other hand, it really should've been covered by insurance and it wasn't.  Do you think I should file a claim?

Update:  It turns out I'm reacting to milk, probably milk protein because lactaid doesn't make any difference.  The question is, how?  I've seen some research that says casein can produce a reaction in people with Celiac genes as well.  For the moment I'm assuming that's the problem, but there isn't much good information on it. Reach out to me if you know more about it. Thanks!

Comments

Post a Comment

Please be nice and stay relevant when commenting. I moderate all comments. Alternatively, use the share button to respond to my posts. Thank you for visiting!

Popular posts from this blog

Resources Page

By -
Image
Frequently updated.  Resources and a network of local providers, meetups, conferences and food sources.  I will add to this post as often as I confirm new information.  It should be Featured (pinned to the top of the blog).  If it's not, please let me know. General Information on Celiac Disease and related links are found at the bottom of the article (very long page, and yes it needs some reorganization).

Need some advice now that you're diagnosed with Celiac Disease or Non-Celiac Gluten Sensitivity?  It can be hard to find my older articles that are of special help to those starting out, but I've collected them on This Page for your convenience.
*Due to SARS-Cov2 aka, Coronavirus, aka Covid-19, I have not heard of any meetings taking place since January. This was the schedule before the emergency.  Additionally, you should call restaurants you intend to support and ask how to order.  Many have switched to take out only.  Oddly, the on-demand labs that do routine te…
Read more

The Great Gluten Free Bread Machine Experiment - Part 1

By -
Image
I got a Cuisinart bread machine! What I made first, how it turned out, what I learned..   coming up!  We all bemoan the high price of bread.  Even someone like me, who stays ketogenic most of the time. Bread is just useful. I'm interested in all the ways people bake bread, especially today with Paleo breads, allergen friendly breads, grain free breads, etc.  Bread is soothing and a big part of our culture, so even if you have to have a strange type of bread or if you can only have a 1/4 piece, it's always important.

Before I was Celiac I dabbled in bread baking.  I loved to make Rye breads especially and rosemary multigrain breads.  But those were gluten breads.  To transfer those skills to gluten free takes a lot of work.  I also don't like to follow rules without knowing why. So I don't consider this "baking" yet.  It's an experiment.  Someday I'll feel like it's baking when it becomes routine.  I encourage you to do the same.  Don't worry…
Read more

Raleigh-Durham-Triangle Deserves a Celiac Safe Gluten Free Event

By -
Image
I've had a long standing frustration about the GFAF Wellness Event that runs regional conventions.  When I first attended, I thought, "Great, these are curated businesses that cater to my needs."  Not so.  These vendors are businesses that say they cater to my needs, but might not.  And the event isn't safe for Celiacs or people with Wheat Allergy.  

So where are we?  We're back to claims being made that we as consumers with an illness have to carefully evaluate.  I was hoping for an event that would make me feel safe and feel that there is an abundance of options.  Instead, I felt like I was participating in a marketing experiment..  "Will the gluten free customers buy  your claims?"

So let me clearly answer that question.  No.  Not unless your food or product is Celiac safe, and if you claim Wheat Free, it had better be allergen safe.

I'm sure it's difficult to find local Celiac Safe vendors to participate in any  GFAF Event.  But when I we…
Read more

Gluten Free Whole Grain Rice Buckwheat Bread Recipe for Bread Machines

By -
Image
Ahhh the bread baking series returns!  New thrills and new spills await us!  I did a great deal of book reading over the holidays about bread baking and I'll share some insights from that.  As a result, I decided to try a very simple recipe for bread in the bread machine, just rice and buckwheat, no other grains.  However it does have what is called a "soaker" of chia seeds.  More about that later.  The results are like a hearty whole grain bread that toasts nicely.  It's sturdy, it can be made into grilled cheese without crumbling into dust.  It stales slowly, and it contains no eggs! It contains milk though.  All the ingredients except a couple are as whole foods as you can go.  There is no purified starch in this bread at all.

This is the Great Gluten Free Bread Machine Experiment - Part 8!  See the beginning of the series here. The purpose of the series is to identify some recipes which work in a bread machine for gluten free eaters who can't commit to baking…
Read more

People with Active Celiac Are More Susceptible to Covid-19 and Pneumonia

By -
Image
If you have Celiac, don't get glutened now, because it will make it easier for Coronavirus to harm you. That's the message from a new video posted by Dr. Alessio Fasano, Director of the Massachusetts General Hospital Center for Celiac Research and Treatment.  (Press the arrow/play button to watch.)






If you don't know who he is, he's a bit of a superstar of the Celiac community.  He and fellow researchers, performed a study, over a decade ago, and worldwide, showing that the prevalence of Celiac is much higher than previously thought.  He found local variations in prevalence such as, that North Africa has a lot more of it than we do in the US. Many of his findings were fascinating, surprising, and ultimately led to the provision of safer food for people with Celiac Disease. Since then, he has continued to support the community and performed more studies.


Viruses and Bacteria
So let's talk a bit about viruses and bacteria.  A flu virus burns itself out in a few days, …
Read more