Resources Page


Frequently updated.  Resources and a network of local providers, meetups, conferences and food sources.  I will add to this post as often as I confirm new information.  It should be Featured (pinned to the top of the blog).  If it's not, please let me know. General Information on Celiac Disease and related links are found at the bottom of the article (very long page, and yes it needs some reorganization).

Safe Restaurants - If it's in this list, I've eaten there personally.  NOTE:  Although it's not something I've seen locally, it is possible to certify Gluten Free food service.
  • Primal  (fine dining, call ahead or reservations) 
  • Akashi (sushi bar)
  • Bull City Ciderworks  (bar, cider is GF, the food truck nearby is not GF though) 
  • Fresh Levant (welcoming atmosphere, in good weather, can sit outdoors, reservations recommended for dinner)


Photo by: Matthew Henry

Haven't tried these, but probably good restaurants:
 With any mixed GF/nonGF restaurant, please call first and talk with the manager if you need Celiac safe food.
  •  Blue Dogwood - a food market in Chapel Hill that includes a fully GF bakery, and other gluten free options.
  •  Burger 21 - I need to find more information to verify their GF protocols, but I ate a the one in Ballantyne and it seems like a good option. It's a "fast casual" dining place, a bit of an upscale burger joint, and they have many GF options.  There's one in Cary and one in Raleigh, as well as one in Ballantyne/Charlotte.  
  • The food trucks in Durham are the true superstars of gluten free though... here's an "everything is Gluten Free" food truck you might want to check out:  https://www.medleync.com/   Keep your eyes peeled for them when in Durham!
  • Bella Monica has a great system for preventing Cross Contamination and is highly recommended by people I've met with Celiac.  Planning to try it soon.  
  • PF Changs is an American Chinese restaurant chain that has methods in place to prevent cross contamination.
  • Zenfish  (Pokebar - a Hawaiian tradition based restaurant) I haven't eaten there yet.  I emailed with the owner and she had this to say:  
 "Thank you for reaching out. We have tons of gluten-free options at ZenFish. We use different utensils for every item on the line. All our sauces are gluten-free and made in house besides the eel sauce. We use tamari gluten-free soy sauce in our sauces and gluten-free miso. Our aioli's are made with mayonnaise. We do not use any wheat soy in production at Zenfish and our cutting boards are all segregated for purpose. The only protein that is not gluten-free is our krab meat (what's in California rolls). All our toppings are also gluten-free besides the crunchy toppings such as our fried shallots, wonton chips etc. Hope this helps!"
  • Jersey Mike's has begun a GF bread option with a separate station to prepare sandwiches. I am unable to follow through on testing it because I'm sensitive to many things such as meat glue.  Please let me know if you have tried it and are celiac and it worked out.  I'm really excited that a ubiquitous deli sandwich joint has made GF available.  There is also a table to help people avoid food allergies of many kinds here...  overall I think they're doing a wonderful job. 
  • CleanEatz is a franchise that provides ready to microwave foods that you pick up  (once a week?) from their location.  I haven't tried it, but legend has it, gluten free is an option.  There is a similar Paleo "fast casual" option, but it isn't local.  However, if you're in Virginia Beach, ask around for Paleo to Go. 
Other Restaurant lists or apps
I may or may not have tried these locations. I consider them too risky for my health, but of course not everyone is the same.
  •  Nima Tested Restaurants in the USA - Nima is an electronic device that detects gluten - note that results will not be accurate when soy sauce with hydrolyzed wheat is used, or any other hydrolyzed proteins such as "gluten removed" beer.  
Warning: Don't use Nima as your only source of information, use multiple sources to decide whether a restaurant is safe or not.  There is increasing debate on whether the Nima device (but not some other devices) is accurate.
Chef Services, Meal Prep Services, Meal Delivery Services, Catering


Medley Food truck (see website for location)
(336) 471-6115
www.medleync.com
https://www.facebook.com/ncmedley/ (can send a message on FB to ask questions)


The Good Kitchen, cooked Meal delivery service
https://www.thegoodkitchen.com/
order online, they make the food and FedEx it to you
100% gluten free and peanut free, organic and local sourcing of ingredients
Not sure where they are located, but possibly Zebulon

Fresh N Lean - cooked meal delivery service
https://www.freshnlean.com/gluten-free-meal-delivery/
Their facility isn't GF, you may need to ask more questions about allergies too.  They have many options other than GF, so if you have a mixed household this may be a good choice.

Green Chef Cooked Meal Delivery service (GFCO gluten free food service certified)
Green Chef - Gluten Free Choices 

Priscilla Cooks, personal chef service
http://www.priscillacooks.com/work-with-me/sample-meals/


Cozinha, Personal Chef Service
http://www.mycozinha.net/sample-menu--testimonials.html
 

Triangle Gluten Free LLC, Gluten-Free Restaurant · Caterer
P.O. Box 1302
Chapel Hill, North Carolina 27514
(919) 225-9582
http://triangleglutenfree.com
  
Specialty Markets
Note:  You might like to look at my advice on how to shop for someone who is gluten free, particularly if you're shopping for someone else (caregivers, etc).  There is a video from Beyond Celiac on this subject here.  And a food list here.
 Supermarkets  and Specialty Supermarkets
  • Food Lion - has a GF section, selection and knowledgeable staff
  • Aldi - an alternative supermarket that has its own line of GF products 
  • Lowes  -  has GF section, with an online GF product list
  • Kroger - seems very focused on the subject, I hope they will post a GF products list
  • Trader Joe's  - food list available, possibly the best place to find micro brew GF cider or beer
  • Whole Foods  -  be very careful to check labels for "made in a facility that also processes wheat", surprisingly I've been fooled more often by products at WF than elsewhere
  • Ingles - not local, but there are some in central and western NC if you're traveling.  Ingles has an excellent track record of trust with gluten free North Carolinians due to excellent customer service. 
  • A Walmart GF Food Guide can be found here
 Local supermarkets (general)
These don't seem to have have any online gluten free resources, but they may have GF products.
  • Harris Teeter - since they have been associated with Kroger, you can find the Store Brand, Simple Truth, from Kroger in some HT stores as well.  Online it doesn't seem as GF friendly as it actually is. I saw several Simple Truth items on a  brief visit which were GF, but not certified.  That's par for the course in store brands which are GF, since the point is to save money, but I'd still feel better about it if a store certified their GF brand.
  • Charlie C's IGA
  • Earthfare - although they have many products, they are tricky because many have a "facility that processes wheat" disclaimer or are from countries that do not have GF laws (be careful of Ramen noodles). 
Not local, Online Specialty Stores for Nutritious Eating

  • Natural Import Company - Traditional Japanese foods, and macrobiotic supplies(seaweed, shiitake mushrooms that were really grown on wood, not sawdust with possible grains in it)
  •  EnerG Foods - one of the oldest and most respected suppliers of gluten and allergen free baked goods, Tapioca Loaf, Croutons, Certified GF products. Has Xanthan free Tapioca Loaf.
  • Starwest Botanicals - wildcrafted and organic bulk herbs and spices, herbal teas, turmeric, ginger, chamomile... 
  • Cultures for Health is the best place to find yogurt, kefir and cheese making cultures online.  Some of their products can be found on Amazon, but you might want to research their "how to" documents before you try them.  I gave the link to one culture in particular because I hope you will google it.  It can really help with skin problems which can be a problem with any autoimmune disease. Here's a PMC article from France about it:  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5488095/

Kitchen Tools and Clever Gadgets
  • Toaster Bags - these are usually made of fiberglass and can be used to protect you bread from gluteny or suspicious toasters, great for traveling, and for restaurants. 
  •   Purity Protocol Oats are truly gluten free.  Most people with Celiac aren't made ill by oats, just the contaminated oats, but be warned, some people with Celiac do react to oats regardless of contamination.
  • Food testing electronics:  https://www.ezgluten.com/     and  https://nimasensor.com/    these two are well known but there may be others. Warning: Don't use Nima as your only source of information, use multiple sources to decide whether a restaurant (or food) safe.  
  • Vitamix - high power professional blenders that can be used also as a wet grinder for traditional Indian cooking, can make hummus, smoothies and more.
Medical practitioners (diagnosis is often harder than the diet)
  • Want to be Tested? Requestatest is local and has discounted Celiac options.  They are a direct to consumer testing company and can open the door to conversations with your doctor even if you don't have insurance, or if you prefer not to wait until a doctor orders the test.  
  • Any Test Now - In Durham, mainly allergy, but very comprehensive, plus they offer B12 shots! 
  • Health Check - MN based, offers very complete Celiac panel, but Allergy tests are comparatively expensive. Affordable monitoring of Thyroid, vitamin D and other Gluten-associated conditions. 
  • WebMD list of practitioners who treat Celiac Disease in Durham NC
  • Also in Charlotte, ME/CFS and Fibro health center (functional medicicine), Hunter-Hopkins Center.  Functional medicine doctors are normal MD's but they do not accept insurance because that would limit their options for using medical tools in complex health cases.  
  • Prime IV Center in Brier Creek (near intersection of Rt. 70 and Rt. 540). Offers OTC vitamins via IV treatment. This place has a real RN, and has hired other phlebotomists to meet demand in the area. If you prefer to discuss your health with an MD, ask for PrimeMD's "Dr. Joe".
  • Not currently recommended:   MyMedLab (overpriced),  Labcorp (hard to use website, unclear prices)
Local Conferences past and present:

Miscellaneous
  • Do African Americans get Celiac Disease?  If so, is the presentation different?  Information on minority groups is very much lacking, but I did manage to find a US centered study about it here
  •  Cleveland.com  has a blog on GF matters, and a recent news roundup (2018) here.
  •  Clinical Trials  -  use the Map tab, it makes it easy to locate local ones. 
  • Suspect mold in your home, worried your brain fog is not from Celaic but from mold allergy?   This company has a good local reputation:  https://ietbuildinghealth.com/blog/
  • Consider learning to make simple homemade tofu from store bought soy milk and nigari, or applying the same principle to hemp-fu or other sources of vegetable protein, especially if you need to avoid meat because of that temporary tick-borne illness.  You have more control and it saves money. 
  • Please be careful if you're new to gut illness, advice that's good for average healthy people is dangerous for people with gut illness.  Listen to your body if you are having bad reactions to probiotics or high fiber foods.  

Links to more general Celiac, Allergy and GFD information

Some of this is technical.  I figure the non technical stuff is easy enough to find, so I'll stick to links that are detailed and specific.  

Other bloggers, podcasts and encouragement:

  • https://chewonthis.life/  Podcast from a woman who had a very hard time healing from Celiac disease.  Very uplifting and chatty.
  • Gluten Dude  -  Blog that interprets gluten free in a strict way and focuses on how to truly heal from Celiac disease through a healthy diet.
  • Casey the College Celiac - A college girl with an amazing Celiac story and she shares so much of what she learned about being socially active while Celiac. 
  • Let's Feel Better - the blog of a frequent speaker on chronic illness, book author and member of several boards associated with rare disease.  Her main subject is dysautomnia, but her book covers any chronic illness and how to survive it socially with your friendships and romance intact. I also like her very logical view of "dangling" that is, being left hanging without any help in medicine.





Comments

  1. In my country, Gluten Free or dieting is not in their "vocabulary" (yet) -- but it should! Hopefully with information like this could open up consumer awareness here... ;)

    Thanks for the share.

    ReplyDelete
    Replies
    1. Thanks so much for visiting! In some countries, such as in northern Africa (Algeria, Tunisia, Egypt, etc), you must travel to the largest nearby city and go to the teaching hospital to get proper treatment for Celiac disease. The prevalence of Celiac in the USA is actually moderate. Many countries have a higher rate than we do, Ireland, Finland, and Algeria have much more Celiac, but in Algeria, for example, diagnosis /treatment is so difficult that many people die of organ failure after enough damage has occurred. Their cause of death is then listed as "liver failure" or "ulcerative colitis." So, even though the incidence is very high, the incidence looks lower than it really is.

      Here is a resource that can be used to find help in your own country: https://celiac.org/celiac-disease/resources/travel-resources/celiac-associations-around-the-world/

      Best wishes for good health to you!

      Delete

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