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Frequently updated.  Resources and a network of local providers, meetups, conferences and food sources.  I will add to this post as often as I confirm new information.  It should be Featured (pinned to the top of the blog).  If it's not, please let me know. General Information on Celiac Disease and related links are found at the bottom of the article (very long page, and yes it needs some reorganization).

Need some advice now that you're diagnosed with Celiac Disease or Non-Celiac Gluten Sensitivity?  It can be hard to find my older articles that are of special help to those starting out, but I've collected them on This Page for your convenience.
*Due to SARS-Cov2 aka, Coronavirus, aka Covid-19, I have not heard of any meetings taking place since January. This was the schedule before the emergency.  Additionally, you should call restaurants you intend to support and ask how to order.  Many have switched to take out only.  Oddly, the on-demand labs that do routine te…

Rice and Buckwheat Bread Recipe Gluten Free Bread Machine Easy PDF Printout

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It's been a while since my experiments with a bread machine and I thought it was time to provide you with a completed one-page recipe you can download and print.  While many bread recipes for people with Celiac, or just those who live gluten free, can be tasteless and boring, this one is bursting with flavor.  When you use real food, and whole grains, plus vitamin packed seeds and high quality ingredients, you get delicious results!  As I said at the beginning of this journey, I decided to tame the bread machine first, because not everyone wants to knead, or bake in an oven.  Whether it's mobility limits, old age, or simple lack of time, a bread machine makes quick work of this chore.  However, I found that many details of bread baking in a bread machine were left out or glossed over in books and articles on the subject.  And that there are differences between machines.  This adds a complexity which each person has to contend with alone.  While I tried to cover each complexity…

Covid-19, Ventilation and CPAP Machines

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Let me just scoop the WHO right now, and tell you that they will probably tell us to ventilate fresh air into workplaces and homes fairly soon.  New robust science on Covid-19 suggests that aerosol droplets which hang in the air for much longer than expected, and do not fall to the ground, as we've been told are one reason why we're having trouble controlling this infection.  I'm not sure what the downside would be to telling people to ventilate clean fresh air into indoor spaces regularly in order to prevent aerosolized viral transmission risk.  I mean it's just good health practice to have fresh air anyway.

I know it's summer and it's HOT out there, but open your windows.
Here's how:

In the morning, as early as possible, before the bugs are buzzing, and before it's too hot, open up, and let the air flow through for at least 30-60 min.  Then you can close up and turn the AC back on.  Do this at least every other day.  Let the house air out while you do…

All Together Now #BLM #ReadingList

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If you're Caucasian and you haven't seen this video, I strongly recommend pulling up your big girl panties and watching it.  It will hurt.   Yet, you still have to see it.  I think that's the central issue of why white people still tiptoe around black people.  And why black people still barely tolerate us.  And that's exactly the way it should be until society finally rights this wrong.  If you don't know what Rosewood and Tulsa/Greenwood are, please go and look them up.  I went to a great high school and history class totally skipped over that part. I'm betting yours did too.

Need me to back up? Reading this years later?  George Floyd was murdered by police officers in May 2020 (upsetting video) and it took a few days to work out exactly how it happened that he ended up on the ground being kneeled on and unable to breathe.   Protests against police brutality and racism in general erupted immediately around the world.

And if you're a woman, then there's…

Avance has Covid19 Testing (yes really)

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Quick note to let you know, I was able to make an appointment for Covid19 testing at Avance Health Care in Durham.  My doctor's office did not offer this testing service. And Walgreens has a daunting online screening form.  So your best bet if you want a test right now is to try Avance.  They said they charge the copay from your insurance because people were getting billed by the testing company if they don't.  So the rumors of "free testing" are not realized as far as I know.  However, the testing does exist in Durham.

I hope we are all are able to get a test, and it shows we had it, and we never really got terribly sick from it.  That's the best case scenario, I think.  💖

Avance Care  website for Durham location.

NC ranks 43rd in the nation for testing, so please tell your friends about this testing site.

Update:  this afternoon (on the 22nd of May) I got an email from Governor Cooper with a link to a list of Covid 19 testing sites in the state. The PDF he sent…

I am one of the #MillionsMissing and I Thank #Nurses Today

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The roots of my illness were visible very early on, but two events in particular led to my downfall from being able to work.  First, I had a lot of dental work at age 18.  Some of it was caps which didn't fit in my small jaw and caused TMJ, which later triggered one of the types of headaches I have.  I have a genetic disposition to migraines anyway and in two years, I had classic migraines.  Second, I had food poisoning at the same time as the first SARS epidemic (2004).  I suspect I had SARS that same year as well. 

Within two years I had been hospitalized with multiple Pulmonary Embolisms and three lung infarcts. My lungs have never fully recovered.  According to even the most conservative reading of the Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / Post Viral Fatigue medical coding, I have post viral fatigue.  To the best of my doctor's knowledge I had reactivation of "Mono" which is Epstein Barr Virus around 2010, and by 2012, I was having trouble worki…

Covid-19 Testing Comes to Durham NC but You Probably Won't Qualify

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I'm ambivalent about announcing that WRAL news says there is now Coronavirus testing in Durham NC.  However they say you must use the online screening to qualify.  And I didn't qualify, big surprise!  And then I lied a bit to see if I could get it to work.  I didn't say I was a healthcare worker, that's one fib too far.  I wasn't able to use any combination of answers to their screening questions that I could think of, short of saying falsely that I am a health care worker.  Earlier in the pandemic, CVS and Walgreens were advertising testing for healthcare workers only.  So I think that's still the case.

This is a rant.  If you don't like rants, stop reading now.
From my brief testing of the screening site, if you say you have symptoms, if you checkmark any of the items which are classic symptoms like "shortness of breath (not serious)" it tells you to go to an Emergency Room right away.  They ask for no details like "is shortness of breath …

Meat Processing, Pandemics and the Kitchen

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This is a time when some common sense changes in behavior are worth doing, especially for those whose gut is more sensitive than the norm. Meat is going through a shortage, and it's a naturally gluten free food, absolutely essential for recovering from Celiac disease. We also finally have some official lists of cleaning products that can destroy SARS-CoV2, aka the Coronavirus responsible for the disease, Covid-19. This article is targeted toward people whose gut system is tender and warrants extra consideration during this crisis. There's no harm in anyone adopting these behaviors temporarily, though. 

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In a pandemic, even the richest countries with the fewest food related pathogens may need to take extra precautions.  I feel that it's my responsibility to speak up when I don't hear the official sources empowering us enough. In the human experience, risky food and water are a common problem.  And just as it doesn't help to deny a pandemic is happening, it…

Amazon Has De-prioritized Cooking Utensils During the Covid-19 Pandemic

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In the midst of a global pandemic, Amazon has been defiant (with me) about keeping cooking utensils on a low priority.  Here are a few screenshots to highlight the problem. This is a dangerous stance because food is a necessity and if you're diagnosed with Celiac now, you will have to go out to a real store to buy new utensils.  People with Celiac have to reorganize their kitchens and often need to buy many new things.  When I asked them about it, one agent actually dropped me without even making an answer, and another offered to make a special case for one item for me.  

Maybe it's my history of having lived through the rationing of a brutal Communist regime, but that offer bothered me more than the priority change.  This pandemic is creating some nasty side effects on the normal pace of life.  I didn't even know how to react to that request.  On the one hand it was someone trying to be nice (and I responded to that).  On the other hand, it's the camel's nose in…