Resources Page

Frequently updated.  Resources and a network of local providers, meetups, conferences and food sources.  I will add to this post as often as I confirm new information.  It should be Featured (pinned to the top of the blog).  If it's not, please let me know. General Information on Celiac Disease and related links are found at the bottom of the article (very long page, and yes it needs some reorganization).

Need some advice now that you're diagnosed with Celiac Disease or Non-Celiac Gluten Sensitivity?  It can be hard to find my older articles that are of special help to those starting out, but I've collected them on This Page for your convenience.
MeetingsRaleigh Celiac Support Group (Rex Hospital) -- Third Thursday every other month - next, July 18th.

GIG WakeMed Celiac & Food Allergy Support Group --   at WakeMed Cary Hospital, 1900 Kildaire Farm Rd, Cary 27518

Wildcraft - Want to try some foraging? Or mushrooming?  https:/…

Kaleidoscope Fest is on September 14th and Gluten Free

Announcement:  There's a gluten free event coming to town!  Please join me and many local stars of the business community for Kaleidoscope Fest!  Buy your tickets before August 1 for a discount.

Even if starting a business is only an embryonic thought at this time, it will be lovely to give it some thought while surrounded by talented successful local businesswomen. See you there!

The 'Celiac Vaccine' Nexvax2 is Discontinued

This is a brief news update.  The widely reported "Celiac vaccine" that was in phase 2 clinical trials was not shown to be better than placebo.  I'm disappointed, but also I'm glad they were clear about what didn't work so we can focus on the next steps.  I don't think any disease is "incurable" and certainly not because one drug failed.  Living with Celiac is a hassle and people deserve to have brilliant minds working on possible solutions.

I'm really grateful to ImmusanT for their work and for stopping the trial with integrity.  These days, it's not certain that a drug company will end trials for a failed drug.  So I'm glad they've shown they're sincerely seeking a real, sustainable solution. And it's valuable to me that they're seeking a cure. Which is another uncertainty in today's medical marketplace.  So I want to thank them for their work and I hope to see more ideas from them in the future, as well as a "…

Market Day! and Oven Lovie's Lasagna!

Not sure if the organic, local and gluten free life is for you?  I understand.  It's not easy, just to get nutritious food prepared every day, and adding more requirements adds time to that effort.  Who has the time?  It takes uncommon will.  It might be thought that my being unemployed would be an advantage.  Except I'm sick so often, it takes a big chunk out of my life still. One of the most important changes I've made has been to focus as much as possible on locally grown and organic foods.  I've tried various methods, delivery services, the expensive supermarket method, and directly contacting farmers.  But the most friendly and comfortable way is still the good old local farmer's market.

Local rumor has it that the Durham Farmer's Market only accepts vendors who produce their own produce or crafts.  No resellers.  I haven't read the rules for vendors, but this seems to be true.  I love some of the vendors at the Raleigh year round farmer's market,…

Wrapping Up Celiac Awareness Month

On this beautiful end of May day, we wrap up Celiac Awareness Month (from last year) with gratitude and renewed courage.  Every year brings us closer to clarity on where gluten hides in our everyday foods.  Every year bring us closer to an answer for why Celiac disease itself is accelerating in our community.  Each voice raised in compassion toward those who have limited food choices brings us closer to dietary freedom and respect.

I note with pride that our community cares for one another and protects our right to safe food even when it inconveniences our community businesses.  Let this year be the year we educate our local restaurants, the year we  protect all children from ridicule because they're "different."  Our freedoms are interlinked.  I will not be free to respectfully decline a cross-contaminated meal until every dieter of every sort is free to choose their food according to their preference or need.

And let this be the year when medical professionals finally…

The Ugly Arsenic-in-Rice Controversy

Rice is one of  the most popular grains in the world. To those of us who need gluten free food, it's a substitute for gluten grains such as wheat, for many cooking purposes, and it's considered hypoallergenic.  In Asia it's a central part of the diet. In Gluten Free cooking and baking, it's usually well represented, and almost ubiquitous.  But it could also contain arsenic at harmful levels and so far, rice in the US isn't routinely tested for arsenic content. The gluten free community has already sounded the alarm about the possibility of arsenic in rice and how that problem is magnified in the Celiac community, where the most popular flour, wheat flour, is not used.  However, there isn't a lot of depth to many articles so I'm going to delve into this subject with gusto!

First a quote from the Verywell article just mentioned:  "the Mayo Clinic looked directly at levels of arsenic in people with and without celiac disease who were following the glute…

Celiac Disease Model, Organoids

In the past few days, a study was published about "organoids" being used to learn more about Celiac Disease.  This is new, but not brand new, since organoids have been used to study Inflammatory Bowel Disease (a condition that's 1/5th as common as Celiac).  The technique has already given us new insight into Celiac, but has some limitations, so let's look more closely at it.

What's an Organoid?
An  organoid is like having a model of the gut (like you might see in a doctor's office) but it works better because it's made up of human tissue kept alive in a laboratory setting.  It can be used to learn more about a disease that affects human tissues like the epithelium of the gut.  Where is it from?  Biopsy tissue that's collected in routine tests might be grown in a lab, then placed in an organoid giving researchers a new way to study a disease. (Fans of Star Trek may be mildly amused by "matrigel's" similarity to "biomemetic gel."…

The Joy of Daring

No matter what sport or activity you enjoy, or how much you concern yourself with exercise as a part of health, daring, itself, is a big part of health today.  I spend some time on this blog worrying about whether health policy writers are being honest when they give out advice, and whether they are just mistaken about some things (listen to the near-panic in the tone of the last paragraph in this article).  I occasionally buck the mainstream advice because I think we can do better.  So as part of that, I'll attempt to show that self-challenge, and confidence building is just as much part of your health, as remembering to eat your greens and drink water every day.

So let's think about that.  What do people often do when they commit to health?  They train for a 5k race, or even a marathon, right?  Or they do as this body-positive athlete does and train for an Ironman competition.  Though she obviously isn't doing that to "lose weight" I think it's daring for …

New Celiac Blood Test May Allow You to Skip the Biopsy

Dr. Vikas K. Sarna and colleagues have a new blood test that does several wonderful things.  It can be used to detect Celiac Disease even if you're no longer eating gluten, so it eliminates the potentially damaging gluten challenge.  It's 90% accurate, so far.  It doesn't require a biopsy/endoscopy.  And it's much cheaper than the way we detect Celiac Disease right now.  So why isn't it already being used? 

Your guess is as good as mine.  So far the only negative I'm seeing is that the study is fairly small, with 62 participants.  And there are perfectly reasonable calls for a larger study.  However, Nexvaxx, the "Celiac vaccine" has a bit more than double that number of participants, which is still small.  And the news is all agog over that one. 
There is a currently a call to action to have a bill pass Congress that would hold drug makers to the same gluten free labeling as other FDA regulated things.  Please participate in it.  And while you'…