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Resources Page

Frequently updated.  Resources and a network of local providers, meetups, conferences and food sources.  I will add to this post as often as I confirm new information.  It should be Featured (pinned to the top of the blog).  If it's not, please let me know. General Information on Celiac Disease and related links are found at the bottom of the article (very long page, and yes it needs some reorganization).

Need some advice now that you're diagnosed with Celiac Disease or Non-Celiac Gluten Sensitivity?  It can be hard to find my older articles that are of special help to those starting out, but I've collected them on This Page for your convenience.
Meetings ----1----
March 18th 2019, at Wake Med -  6:30 PM WakeMed Cary Hospital in Conference Room A. Speaker: Henry Caldwell, who is a Team Leader at the Whole Foods Gluten-Free Bakery in Morrisville. Contact:
Celiac & Food Allergy Support Group (GIG) WakeMed Cary Hospital 1900 Kildaire Farm Rd. Cary, NC 27518 Phone: 919-350-…

Popular Search Engines are Graded on Gluten Free

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Finding gluten free resources is difficult for anyone who is maintaining a gluten free diet because they have a disease that requires it.  I tried running a search for "Durham gluten free" in several search engines I know about today. What I found was surprisingly little difference between the search engines.  And all of them demonstrate a basic lack of understanding about what people want when they search for gluten free in their area.

"Gluten free" should be the same as "safe for people with Celiac Disease."  If other people want to partake in that restriction, that's OK.  But if so called "gluten free options" exist which would not be safe for those with Celiac, then that carries a risk of injuring people with Celiac Disease, Gluten Allergy, Wheat Allergy, Gluten Ataxia, some forms of IBD, and EDS (among other diseases). Since most search engines interpret the phrase "gluten free" to mean that a person is probably looking for a …

Ciorbă - Romanian Sour Soup with Meatballs (Gluten Free)

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When my mom and I were first creating a new life in the US, she would sometimes make a Romanian soup called "Chor-buh" spelled Ciorbă. Now it's much later, and the internet tells me similar soups can be found in Turkey, and the word is derived from the Persian "shorba."  I looked farther and found similar soups in other cultures so the recipe changes a bit depending on which location it comes from.  I'll try to stick to the Romanian version in this recipe. This version is a bit of a production to make, but results in a delightfully bright colored soup with fresh flavors, anchored by rich meatballs. The highlight of any weekend.



The full name of this recipe is Ciorba de Perisoare, which sounds like "Chore Buh de Perry Shore Eh."   Soup with Meatballs is the translation.  Romanian has the honor of being the closest living language to Eastern (vulgate) Latin. It's a shame I've forgotten nearly all of it. Famous Romanians include Elie Wiesel,N…

Cultured Meat, Nutrition and Labeling

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For several years now, the USDA and FDA have been meeting about a new idea in food production currently referred to as "cultured meat."  I don't have an immediate knee jerk reaction to it since I've worked in a lab, growing things in petri dishes, but I do notice that there are two concerning aspects for me.  First, the discussion around labeling has unfortunate echoes of the labeling arguments around GMOs in the 1990s.  And second, hardly anyone is discussing the nutritional value or the opportunities for engineering meat with specific amounts of both macro or micro nutrients (that is protein, fat, vitamins and minerals).

As Americans we have chronic deficiencies of certain nutrients, even the healthy.  It's even worse for those with Celiac Disease that directly causes malnutrition.  While I can understand why this wouldn't be the first issue addressed by the potential manufacturers of this food, I think, if they did address nutrition (not just protein) some…

Celiac Safe VS Gluten Free

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It has been nearly a year and I'm anticipating the return of the GFAF Wellness event that comes to Raleigh each year.  Last year there was an unavoidable argument around the inclusion of  a few non-celiac safe options.  This year they've rebranded and there's a new website called Living Free Expo that has kept the same schedule, more or less. I'm very hopeful about the change. I recommend you consider going to the event if you can. Supporting local efforts to make the gluten free life easier is important.Those who are new to the GF community are advised to always use caution, just as you would in a new supermarket or restaurant, when evaluating claims of suitability for your dietary needs.

The first event of the season will be later this month in Charlotte, NC.  I've already identified a new business that I'm pleased to add to my resources page:  The Southern Olive just on the other side of the NC/SC border, south of Charlotte.  If you 're nearby, check i…

Chit Chat: Local Millefiori Bakery, Thyroid, Fatigue and Positivity

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Here's an update on my health, it might be part of a series.  Just a collection of things I've been thinking and doing lately.

Millefiori Bakery in Durham, NC
I changed my diet to be more ketogenic recently. The last time I did that, I wasn't aware of Celiac Disease and every "cheat day" involved gluten.  I felt much better on keto, but something was still "wrong" and now I know it was gluten.  This time around, I'm planning for my future high carb days.  I went to Millefiori Bakery and bough three loaves of delicious sourdough gluten free bread made of sorghum and organic white yams primarily.  It's absolutely essential for me, on a keto diet to have excellent carbs that are satisfying and nutritious whether I am using a small slice of bread per day, or having a high-carb day.  Having a "cheat day" that includes harmful foods isn't a good idea for me.

Here's a picture of the incredibly delicious bread I bought to…

My Keto Day

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For several reasons I'm working on going back to the Ketogenic Diet now that I've spent a year recovering from Celiac Disease.  My neurological issues have suffered while I was eating a more varied diet that included dense carbohydrate foods.  But I felt it was important to allow my body to absorb as varied a diet as possible while recovering. Now, I've made some progress and I'm moving back toward a more neurologically supportive diet.

Last October, I had written a series of articles describing the ketogenic diet and its many myths and complexities.  Now, partly to keep myself accountable, I'll post today's food plan as I'm transitioning back onto my keto diet after being away for more than a year. For me, this is fairly complex since I try to stay organic and avoid pre-made foods.  If you're curious about the diet, you will quickly see that accepting pre-made dressings and using non organic foods can make this diet cheaper and less of a hassle. I try …

Research News: T Cells are Permanently Changed by Celiac Disease

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An interesting study was published very recently showing that T-cells, a part of the immune system, are permanently changed after Celiac Disease becomes active.  The same or a similar process is also seen in bowel disease such as Ulcerative Colitis.  Celiac disease is an illness primarily of the small intestine, but is also associated with the development of bowel disease and certain types of colon cancer, as well as other chronic inflammatory, autoimmune diseases.  For the first time, we have a hint to explain why Celiac Disease can be the starting point for other illness later in life.

The article is a collaboration between prestigious universities from several countries including the following.

International Collaboration
from: https://www.ncbi.nlm.nih.gov/pubmed/30739797
Committee on Immunology, University of Chicago, Chicago, IL, USA; Department of Medicine, University of Chicago, Chicago, IL, USA.Division of Infection and Immunity, Cardiff University School of Medicine, Cardiff…