Resources Page

Frequently updated.  Resources and a network of local providers, meetups, conferences and food sources.  I will add to this post as often as I confirm new information.  It should be Featured (pinned to the top of the blog).  If it's not, please let me know. General Information on Celiac Disease and related links are found at the bottom of the article (very long page, and yes it needs some reorganization).

Need some advice now that you're diagnosed with Celiac Disease or Non-Celiac Gluten Sensitivity?  It can be hard to find my older articles that are of special help to those starting out, but I've collected them on This Page for your convenience.
MeetingsRaleigh Celiac Support Group (Rex Hospital) -- TBD,  probably third Thursday in May 2019

GIG WakeMed Celiac & Food Allergy Support Group --April 15th, 2019 (Monday) at 6:30 pm in Conference Room A in WakeMed Cary Hospital, 1900 Kildaire Farm Rd., Cary NC 27518 Email:  facebook: @wakemedcaryce…

Gluten Free, Celiac and IBD

Gluten is a funny thing.  A person might not react to it in the traditional way, but it still causes a problem with zonulin (the thing that prevents leaky gut syndrome), and if so, it can mess up thyroid, liver or other organs.  I think our focus on HLA as the "only cause" of Celiac disease, which is the "only" serious disease caused in a few people with unfortunate genes is very short sighted.

It's actually circular reasoning that ignores the extra-intestinal manifestations of the disease.  Since IBD is focused on the large intestine, and Celiac Disease damage (that's tested for) happens in the small intestine, there is a false assumption that they aren't related.  But a recent scientific essay (opinion) suggests a possible direction for where to find the relationships that are missing. How many people who just read that essay thought... hey wait, I've heard of glutamate before... isn't it involved in some neural problems?  Yes, exactly.  If t…

Rewilding for Better Nutrition

Just to show that no matter how much you know, there's always another new idea out there if you're open to it, I had just written an article about Common Sense Health Tips, and along comes something that moves the goal posts of nutrition, called rewilding. This is going to be a post with many "soapbox" moments.  I can't help that, but I'm not as critical of the modern world as some who practice rewilding.  To be honest, I haven't practiced it in more than 15 years and until recently I didn't know there was a word for it.  About two years ago I was reminded of it by a random email I received. Recently, I've been inspired by a new book I'm reading.

Matters of nutrition are central to my health, and often have a lot to do with Celiac Disease.  I don't think a person needs rewilding to recover from CD, but I will lay out my belief that my health deteriorated after I stopped taking actions like passively foraging for some of my food. I did th…

Primal Restaurant is Closed!

Primal is closed!  I'm as shocked as you are!  In fact both restaurants run by Tim Lyons are closed:

Only the bar in Hillsborough is still open:

Please join me in thanking Tim Lyons and Bo Peterson for their dedication to Celiac-safe 100% gluten free restaurant food in the Triangle!  You can message him through Facebook, I suppose.  At this time, I've asked "what happened?" but haven't received a reply yet.  A local restaurant blog did answer though and it looks like the restaurants may not have been as profitable as hoped.  But I'm not sure. 

I'd like to write a longer thank you article, including how long they were in business, what challenges they faced, and maybe a story or two of the good times.  Because good times were certainly had. 

Until then, thank you, and we'll miss you, Primal.

Secrets of Gluten Free Flours

If you've tried your hand at making gluten free flour mixes, then you've wondered how come two types of rice can have totally different binding capacity.  And if you've looked at India's cooking (as I have), looking for secrets of gluten free thickening and binding, you've noticed they use something called a wet grinder to prepare grains and beans before making a thickened sauce or a dough.  Today I'm going to explore this aspect of gluten free cooking because I stumbled on a detail I hadn't found before and I want to share it. Maybe it will help someone who's never heard of a wet grinder and might find it useful. 

I've tried several online forums to find out why Indian cooks use a wet grinder, instead of cooking a grain and then mashing the softened grain.  I'm not sure if the technology and strategy of it has survived over time.  Or maybe the people I got in touch with couldn't explain clearly.  Like most people they probably just do as t…

Specific Common Sense Health Tips

There are many health tips out there, but I've been reading some lists lately and there are a few that are agreed by everyone, and some that I think are important, but missing. People get plenty of tips for what to do to prevent specific illness, but what about overall health?  What's your roadmap? How does a person create a roadmap for staying healthy? How do we maximize quality of life during our brief time on Mother Earth?  Today's post tries to address these questions.

Let's review the existing collections of tips. Google has surprisingly few results in this area.  I'll mention the top 2 results relevant to this topic and then add a gem that I found which can be adapted without much work. gem that can be adapted:  The first two are directed at averag…

Updated Guidelines for Routine Retesting of Celiac Markers (March 2019)

I know how simplistic it can seem to have Celiac Disease.  Stay away from gluten.  Done. But it's not that easy. Gluten sneaks in and continues to damage the body.  Not just the gut lining, but the thyroid, the liver, the hemoglobin level in the blood (anemia), and more.  So retesting the levels of reaction, and the likely candidates for autoimmune harm, would be common sense.  But not everyone knows you have to do that, and some don't think it's needed.  On the latter, hey, it's a free country, if you don't want it tested, or can't afford it, that's OK.  But if you do, and your doctor doesn't, the situation is more tricky.

To help you communicate better with your doctor if you do want regular testing of Celiac disease activity levels, you might want to know about a new guideline published by researchers in Denmark and The Mayo Clinic in the US. Your doctor has access to the full text, but this is the gist:  In the first year you should be retested twi…

Popular Search Engines are Graded on Gluten Free

Finding gluten free resources is difficult for anyone who is maintaining a gluten free diet because they have a disease that requires it.  I tried running a search for "Durham gluten free" in several search engines I know about today. What I found was surprisingly little difference between the search engines.  And all of them demonstrate a basic lack of understanding about what people want when they search for gluten free in their area.

"Gluten free" should be the same as "safe for people with Celiac Disease."  If other people want to partake in that restriction, that's OK.  But if so called "gluten free options" exist which would not be safe for those with Celiac, then that carries a risk of injuring people with Celiac Disease, Gluten Allergy, Wheat Allergy, Gluten Ataxia, some forms of IBD, and EDS (among other diseases). Since most search engines interpret the phrase "gluten free" to mean that a person is probably looking for a …