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Frequently updated.  Resources and a network of local providers, meetups, conferences and food sources.  I will add to this post as often as I confirm new information.  It should be Featured (pinned to the top of the blog).  If it's not, please let me know. General Information on Celiac Disease and related links are found at the bottom of the article (very long page, and yes it needs some reorganization).

Safe Restaurants - If it's in this list, I've eaten there personally.  NOTE:  Although it's not something I've seen locally, it is possible to certify Gluten Free food service.
Primal  (fine dining, call ahead or reservations)  Akashi (sushi bar)Bull City Ciderworks  (bar, cider is GF, the food truck nearby is not GF though) Fresh Levant (welcoming atmosphere, in good weather, can sit outdoors, reservations recommended for dinner)

Photo by:Matthew Henry
Haven't tried these, but probably good restaurants:
 With any mixed GF/nonGF restaurant, please call first…

Drug Regulators and Companies are Feuding over a Ban in India

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More than 300 combination drugs have been banned in India since 2016.  This is the result of an argument between Pharmaceutical companies, citizen groups, the government and, I believe, patients.  It has the potential to be far reaching.  I'll try to keep this article from rambling, but it touches on many themes I often write about.



Citizen's groups say that the combinations of drugs (similar to combination nausea/diarrhea medication, and cough/cold combinations) are sometimes irrational and sometimes dangerous.  Patients say they are useful and say it with their hard earned money.  Pharmaco's say they are just providing a needed product.  The government says their experts say most of the formulations are problematic. You might be surprised, but I'm with the Pharmaco's on this one!  I think in this case, they really are just providing a service, as they say. 

Patients find combination drugs to be helpful apparently, because they're popular.  Now, the Indian go…

Blood Clotting Problems in Celiac Disease

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For some reason, blood clots are more likely if you have Celiac Disease. We don't usually connect these two conditions.  Blood clots are the domain of cardiologists and neurologists who specialize in strokes.  But we know that Celiac Disease comes with associated illnesses such as heart disease, autoimmune disease, thyroid, and diabetic problems.  Now we know that it also comes with an increased risk of blood clots.

Exactly how those things connect with each other is a giant topic and crosses many medical boundaries.  Things like that can be shown to be associated, but they are hardly ever treated together because it would require collaboration between gastroenterologists and cardiologists, endocrinologists or rheumatologists.   The wave of the future will be these collaborations, but we patients must push our doctors and insurers to organize it.

So it's explanation time!

Let me pull apart the tricky words in the article below for you, and you'll see how blood clots connec…

Roasted Organic Chicken Thighs with Butternut Mash

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It's recipe time once more!  We'll explore why butternut mash beats the pants off potatoes any day, and how to make finger licking sweet garlic cloves while roasting chicken thighs to perfection.  You'll need a skillet that can go into the oven, so its handle must be made of silicone or metal.  Several such skillets can be found in any store, even the grocery store.  Or you can use a cast iron skillet for this, but use a large one because you'll need some room.  So that's why I use a regular, not cast iron skillet.  I'm just not up to the weight of a large one every day.  Whether it's a special dinner or an everyday meal, add a salad to this, and you have a feast!

 You may have noticed that garlic can be roasted until it's soft and sweet, not pungent at all.  Or you might not have noticed yet.  This recipe features sweet-roasted garlic, and if you haven't had that before, you're in for a surprise.  When garlic is roasted, its enzymes interact to…

News: Clinical Trial in Phase 2 is Testing a Vaccine for Celiac Disease

There is a significant news release today about a Phase 2 trial for a vaccine that might remove the fear of accidental gluten ingestion for millions of people with Celiac Disease.  Many countries have done studies of the wellbeing of Celiac patients and discovered that the fear of accidental ingestion is the largest contributor to overall lowered wellbeing for people with Celiac Disease.  Especially teenagers, who struggle to maintain a social life while being severely limited in what they can eat and drink.

https://globenewswire.com/news-release/2018/10/30/1639162/0/en/ImmusanT-Initiates-Phase-2-Enrollment-for-its-Lead-Therapeutic-Vaccine-Candidate-in-Patients-With-Celiac-Disease-in-Australia-and-New-Zealand.html

The company is called Immusan T and you can enroll in the US, Australia or New Zealand.

Where to apply for enrollment:  https://www.clinicaltrials.gov/ct2/show/NCT03644069?term=NCT03644069&rank=1

The name of the product is currently "Nexvax-2"

Note that usually,…

Ketogenic Diet Part 3: Reality Check

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I originally thought there was no point in repeating what other people have said about the ketogenic diet.  However, after doing some research for this article, I realized that many new websites, seeking ad clicks, have sprung up.  And now, it's necessary to point you to some right resources.  This article will help you identify which sites are worthwhile, and which are just clickbait.  Let's start with some myths.

Myths

There are lots of myths surrounding the diet.  You can find a list of ordinary myths anywhere, such as, bad breath, constipation, etc.  These are all potential annoyances, but there's a growing amount of just plain bad information too.  A site may not be legit if:

1.  It overly focuses on the keto flu, gives dire warnings about fiber and oily tarry stools, etc.  

 2.  It uses macros, percentages, or oversimplifies the diet as a "Protein and Fat" diet.  Also see #7 below.

3.  It tells you that you have to use their product for best results. Or mu…

Ketogenic Diet Part 2: The Gallbladder

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It's hard to find good information about the gallbladder.  The modern medicine view is that it's probably going to fail in middle age and should just be removed.  So why care about it?  If you're in need of a ketogenic diet, then it's better to have a gallbladder, but it's not necessary.  I've said before I was "transitioning" to a keto diet.  The usual way to do that is to fast for 24 or 36 hours, and then instantly switch to eating a keto diet.  But I don't have my gallbladder, so I'm switching slowly, reducing my carb intake and increasing my fat intake by steps.  It's harder to do that way, but I get better results.



One of the effects of undiagnosed Celiac disease is a leaky gut.  Semidigested food bits and germs can pass through the gut barrier.  I was telling doctors that I felt like I was having peritonitis, that the symptoms were there.  But I am obese and when they felt my stomach for "hardening" I don't think they f…

Ketogenic Diet Part 1: Versus the DASH Diet

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For several reasons I've decided to embark on a multi part series on the Ketogenic Diet.  I've always wanted to, but I wondered if it was off topic.  And I argued with myself that there's plenty of information out there already so why should I parrot it?  I also don't think that everyone should "go keto" but I do wish everyone would stop disparaging it.

However, it's become obvious to me that many people are under the mistaken impression that the Ketogenic diet is some kind of unscientific fad, instead of a medical diet on par with the Gluten Free diet for Celiacs, or the low-fiber diet for diverticulitis, or the low-vitamin K diet for people on warfarin, or the low FODMAP diet for IBS, etc.  The number one mistake made is the assumption that keto a "high protein" diet.  It most certainly isn't. But before I launch into myths about it, let's talk about how it differs from the more common DASH diet.  

If you're sick enough to have a …

Angeled Eggs with Easy Mayonnaise Alternative LCHF

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Have you read those articles or seen those videos of people making mayo?  They always assure you that it's easy, and that it's safe to use raw eggs.  OK I guess, if your beating arm is strong, and if you're willing to take a risk.  But what is it really?  A sauce.  A sauce, made cold, of emulsified oil.  So all we really need are oil, water, and an emulsifier.  You might wonder if it will taste good.  I can assure you it tastes better than any mayo you've ever tasted.

Other than Hellman's (R), I think most mayo, that's store bought, is disgusting.  And the more "organic" or "extra virgin" it is, the worse it tastes.  I haven't tried them all but I've tried many while looking for something more nutritious than Hellman's (R).  I think the problem is, they don't preserve them enough (we all demand no preservatives, right?), and the oil is rancid. 
So in a fit of pique, I came up with a piquant and lovely sauce made mostly of oil…