Resources Page

Frequently updated.  Resources and a network of local providers, meetups, conferences and food sources.  I will add to this post as often as I confirm new information.  It should be Featured (pinned to the top of the blog).  If it's not, please let me know. General Information on Celiac Disease and related links are found at the bottom of the article (very long page, and yes it needs some reorganization).

Safe Restaurants - If it's in this list, I've eaten there personally.  NOTE:  Although it's not something I've seen locally, it is possible to certify Gluten Free food service.
Primal  (fine dining, call ahead or reservations)  Akashi (sushi bar)Bull City Ciderworks  (bar, cider is GF, the food truck nearby is not GF though) Fresh Levant (welcoming atmosphere, in good weather, can sit outdoors, reservations recommended for dinner)

Photo by:Matthew Henry
Haven't tried these, but probably good restaurants:
 With any mixed GF/nonGF restaurant, please call first…

Learning to Cook - A Celiac Disease Essential Guide

Is your New Year's resolution to eat less packaged foods?  Well if so, then you're in luck because I'm about to share my favorite tips and videos for home cooking!  

Going gluten free forces many people to cook regularly for the first time.  Even if you believe that you can't boil water, there are some strategies you can use to learn to make yourself safe, gluten free food at home.  And it will be better than what you find in restaurants anyway.

As a GF cook, you will need to get hip on how to travel with your own meals, where to safely heat up your food, how to safely use a shared kitchen, and many other strategies that the average cook doesn't need to worry about. I'm not sure I can cover all aspects of all of those things in one post, so I will limit this one to just cooking techniques I consider essential, and follow with a collection of videos that may help you.

So how does one learn to cook?  
One good place to start is a free trial of the NY Times Cooking

Toxicity and Truth on Today's Internet

For the last two years, it has become obvious that there is a tone of insincerity in the  toxicity of comments and posts online. There's always been an edge of risk, but lately it's become so toxic out there, that if you shared your thoughts, the response was very likely to be overly harsh and judgemental.  And in an Orwellian twist, a "conspiracy theory", that it was due to the Russian paid trolls, turned out to be true... even while they turned out to be promoting other, false, conspiracy theories.  It's enough to make your head spin!

In the first few years of the internet, the old BBS/college culture of the internet(s) made space for itself on the new open "www" network.  It was a culture that appreciated amusement and dabbled in trolling, but it wasn't directed at any goal, just people talking.

Recently the toxicity of the internet has been given cover by the attitude that such trash talking was just normal people talking.  Actually it wasn'…

Iron Deficiency Anemia and Celiac Disease Around the World

Everyone's abuzz with Celiac Vaccine news, which is only fitting.  But an interesting development in Celiac Disease science is taking place in the science journals.  Apparently several countries have studied the connection between Iron Deficiency Anemia and Celiac disease and two recent studies show how fundamentally different results can be in different populations.

When I studied biology and chemistry, we had a talk in every science class about the scientific method.  Then the same talk in statistics class.  The sample size must be large enough to cover all of humanity if you're going to say "all humans are like X" from your results.  Therefore, because science is siloed into individual countries, their sample is necessarily limited to local people. The Japanese don't often do studies on people from all 170-something countries in the world.  Neither do the Americans or anyone else.

Watch how the prevalence of Iron Deficiency with Celiac Disease changes from Sw…

Drug Regulators and Companies are Feuding over a Ban in India

More than 300 combination drugs have been banned in India since 2016.  This is the result of an argument between Pharmaceutical companies, citizen groups, the government and, I believe, patients.  It has the potential to be far reaching.  I'll try to keep this article from rambling, but it touches on many themes I often write about.

Citizen's groups say that the combinations of drugs (similar to combination nausea/diarrhea medication, and cough/cold combinations) are sometimes irrational and sometimes dangerous.  Patients say they are useful and say it with their hard earned money.  Pharmaco's say they are just providing a needed product.  The government says their experts say most of the formulations are problematic. You might be surprised, but I'm with the Pharmaco's on this one!  I think in this case, they really are just providing a service, as they say. 

Patients find combination drugs to be helpful apparently, because they're popular.  Now, the Indian go…

Blood Clotting Problems in Celiac Disease

For some reason, blood clots are more likely if you have Celiac Disease. We don't usually connect these two conditions.  Blood clots are the domain of cardiologists and neurologists who specialize in strokes.  But we know that Celiac Disease comes with associated illnesses such as heart disease, autoimmune disease, thyroid, and diabetic problems.  Now we know that it also comes with an increased risk of blood clots.

Exactly how those things connect with each other is a giant topic and crosses many medical boundaries.  Things like that can be shown to be associated, but they are hardly ever treated together because it would require collaboration between gastroenterologists and cardiologists, endocrinologists or rheumatologists.   The wave of the future will be these collaborations, but we patients must push our doctors and insurers to organize it.

So it's explanation time!

Let me pull apart the tricky words in the article below for you, and you'll see how blood clots connec…