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Frequently updated.  Resources and a network of local providers, meetups, conferences and food sources.  I will add to this post as often as I confirm new information.  It should be Featured (pinned to the top of the blog).  If it's not, please let me know. General Information on Celiac Disease and related links are found at the bottom of the article (very long page, and yes it needs some reorganization).

Safe Restaurants - If it's in this list, I've eaten there personally.  NOTE:  Although it's not something I've seen locally, it is possible to certify Gluten Free food service.
Primal  (fine dining, call ahead or reservations)  Akashi (sushi bar)Bull City Ciderworks  (bar, cider is GF, the food truck nearby is not GF though) Fresh Levant (welcoming atmosphere, in good weather, can sit outdoors, reservations recommended for dinner)

Photo by:Matthew Henry
Haven't tried these, but probably good restaurants:
 With any mixed GF/nonGF restaurant, please call first…

Research - Celiac Disease and the Thyroid

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Here is a research roundup that shows some of the connections between Celiac Disease and the Thyroid.  I'm not a doctor, or even a researcher.  However, I am capable of reading research and mostly understanding it, due to my background.  Clinical practice is often far behind science, and the ways the practice changes can sometimes be arbitrary.  One change may require only a few studies, others will require 30 or more studies with thousands of participants, and multiple meta-reviews all reaching the same conclusion.

Well some people, especially newly diagnosed Celiacs who are elderly, may not have time to wait.  Knowing the science can help people ask their doctor the right questions and lead them to the right treatment faster.  I was told to come back later, when I was sicker so many times, that I took science into my own hands and started leading my own treatment.  And it helped a lot!  Maybe some of these insights will help you find some good new questions to ask next time you…

Upgrade your Gluten Free Diet to Gain Health Benefits

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Although it's enough for most people to avoid gluten, there are other diets that are healthful and can be done gluten free.  They may provide more benefits depending on your situation, especially if your diagnosis came too late to prevent a lot of damage.. Keep in mind that the more restricted the diet is, the more careful you have to be to ensure you have a wide range of nutrition in your food.  Here are some ideas for how to upgrade your diet.

Vitamins are optional but highly recommended for everyone who is dealing with a deficiency causing disease. I'm an advocate of using organic foods but I also take a daily multivitamin which makes a difference I can feel. I currently take this one, but always make sure your vitamins and supplements are gluten free! If you're new to multivitamins, you might wonder why 'without iron' -- the reason some people take iron separately is because it can cause constipation.

Other diet ideas that are gluten free, or can be:
Th…

Easy Gluten Free Meals - Tips and Tricks for Home or Travel

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We sometimes think of old fashioned cooking as seasonal. That's true, the type of soup, stew and casserole suggested, even in modern food magazines, changes with the seasons.  There are a lot of books out there discussing canning to preserve harvested organic food.  But it takes a real foodie to discover the kid brother to canning, that is, dehydrating.  Since I've dedicated myself to being 100% organic in my food choices,or as close as possible, my choices are quite limited.  Luckily, many staples are already available organic.  Just, not always.  To some degree, I'm back to seasonal eating.

That's OK with me.  I accept foods that are either certified organic or biodynamic and of course, they must be either gluten free labeled, or naturally gluten free.  I'm lucky I adore soups, and I have already experienced ketogenic dieting (among many others), so I don't feel like my diet is unbalanced due to too many restrictions.  My belief is that since my body has been…

The Gluten Free Home - Save Money on Staples at the Indian Market

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Many people have asked many times, “Why are bags of gluten free flour so tiny?  Where are the 5 lb bags of flour for holiday baking? Where do I find unusual flours for less?  These are so pricey!” If I wanted to bake bread, I’d have to buy several boxes or bags of flour, each one more expensive than the next. And even if I know how to cook, I need to learn new skills and that takes trial and error.  They say you have to break eggs to make an omelet, but I'm not sure they'd say that if eggs were as pricey as gluten free flour.

I also believe that organic is essential for health, not a luxury, so that's a double whammy for price.  Let's see what we can do to reduce the financial pain of organic gluten free staples.

I’ve found a place locally that can help save some money.  Even if you don’t like Indian food, you should still check out Indian food markets like Patel Brothers in Cary and Pinehurst NC.  They carry organic and gluten free versions of many staples I need, s…

Three Sisters Organic Chicken Stew - Crock Pot & Gluten Free

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I got into a habit of making an Organic Chicken Stew every week, sometimes more than once a week.  I don't eat out almost ever so that's not too much, andIt's so easy! There's a bit of chopping, but I'm not always capable of finely chopping veggies.  So I just didn't, and it's better that way!  I chop them in bite size chunks or even two-bite chunks.  That helps avoid the mushy vegetables you sometimes get from a Crock Pot.

I won't send you out to find exotic ingredients that you'll sub anyway, just good wholesome stew.  I think it's important to have all organic ingredients so that's what I use.  I noted 'organic' on those I consider to be more important than others, such as vegetables that are known to have GMO versions.  This kind of crock pot classic is great if you want to have ready meals when you get home after a day's work, or to make overnight. 




Three Sisters Organic Chicken Stew Made in a Medium size crock pot.  If you …

Raleigh-Durham-Triangle Deserves a Celiac Safe Gluten Free Event

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I've had a long standing frustration about the GFAF Wellness Event that runs regional conventions.  When I first attended, I thought, "Great, these are curated businesses that cater to my needs."  Not so.  These vendors are businesses that say they cater to my needs, but might not.  And the event isn't safe for Celiacs or people with Wheat Allergy.  

So where are we?  We're back to claims being made that we as consumers with an illness have to carefully evaluate.  I was hoping for an event that would make me feel safe and feel that there is an abundance of options.  Instead, I felt like I was participating in a marketing experiment..  "Will the gluten free customers buy  your claims?"

So let me clearly answer that question.  No.  Not unless your food or product is Celiac safe, and if you claim Wheat Free, it had better be allergen safe.

I'm sure it's difficult to find local Celiac Safe vendors to participate in any  GFAF Event.  But when I we…

Why Insurance Meddling in Doctor Decisions and Pharmacies Must STOP

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On July 16th, 2018, HHS took down the guidelines for doctors website, www.guidelines.gov.  I'm pretty sure that's who made it not-ok for ER's to give vitamin IV's, which have helped me a great deal. So I hope it's obvious why I'm glad it's gone. I'd be even happier if guidelines written by insurance companies were also repealed. Clinical Practice Guidelines, published by insurance companies, and many other government bureaucracies bind doctor's hands so that in some cases it's impossible to give you proper medical care.  Here's more of them.  They're not going to go away easily. 
Their original purpose was to help people identify correct treatments.  But in effect it has merely helped identify when they've been treated with a non standard treatment so if it turns out badly, they have some basis on which to sue for malpractice and hopefully that way they can afford to have the correct treatment or be compensated for a loss they can&…

Intravenous Therapy to the Rescue!

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In the past month I've had 4 Intravenous treatments with 0.9% saline and nutrients. I have now slowed down to once every 3 weeks, which is what I noticed was the maximum time for a good effect from one IV. Each one is around $200 so I'm glad the big push is over. I also feel "worlds" better!
Recap: I get these IV's because it's hard for me to generate that initial burst of energy that is required to do anything important like stand up our of a chair, have good reflexes, or even recover from an exertion. 
This fatigue type could be caused by one or more of four doctor diagnosed conditions I have, but the two I focus on are ME/CFS and Celaic (officially Non Celiac Gluten Sensitivity, but I've been told to just say Celiac). The other two are Osteoarthritis and Fibro. I'm very suspicious of the Fibro diagnosis even thought it fits, but that's another story.
My recovery and my energy levels, despite the stress of the recent politica…